reflection

as this year/decade comes to a close i realize that i haven't written on this blog in more than a year.  it's been a blur.  the life of a small business owner, i suppose.  december is so busy that christmas comes and goes without my noticing (except that i get a day off on the 25th).  so, i didn't even consider that a new year was upon us until i started seeing social media posts about the decade ending.

that's when it hit me - this decade has been a bitch and i'm glad to see it go.  but it has also been ten years of...growth...maybe.  it begin with me in a job i didn't love but that provided me a good living, i owned a home, had a couple of dogs and a cat.  it was okay.

the flood in may of 2010 changed everything - i lost everything.  every thing.  but the most important thing i lost was me.  the trauma changed me.  it damaged me.  i know now that it also set me free.  in the best way it taught me to have no attachment to things but in the worst way it taught me to have no attachment - period.  

may-oct 2010 we rebuilt the house.  oct. 2010-june 2012 i was nearly paralyzed with anxiety and rarely left the house.  in 2011 i lost an aunt to cancer.  i started working in june 2012 at a local used bookstore and while i still suffered from severe PTSD i was able to go to work.  in 2013 i lost my 3 remaining grandparents and a great-aunt in 7 months.  i stayed there until 2014 then went to work at a friend's jewelry store where i learned a lot about sales and business and customer service.  

in august 2015 daddy was diagnosed with stage 4 lunch cancer and he died in april of 2016.  it was, is and remains the hardest thing i will ever go through.  i'd often heard people talk about the "club" you join after losing a parent.  i've heard people say you don't really become an adult until you lose a parent.  i'm afraid it's true.  it's the most untethered to life i've ever felt in a life that has felt full of floating just out of range of most people around me.  

almost immediately i opened my first bookstore (daddy never got to see it open but he was there when we painted the walls). upon reflection it's obvious i wasn't capable then of the stamina or drive i needed.  it's also obvious that i opened in a neighborhood unprepared to sustain a used bookstore. i was incapable of taking care of myself at the time and stopped paying all my bills and called my mortgage company and told them to take my house.  i didn't want it anymore - it had tried to kill me and i wasn't staying there one more night and i wasn't paying one more dime.  i was lucky that my mother had inherited a house from her aunt that was sitting empty so i took the dog and 2 cats and moved.  i left behind about 3/4 of my meager belongings because i didn't want anything that had ever been inside that house. i eventually filed bankruptcy (on just one credit card a credit union line of credit) to avoid foreclosure.  they foreclosed anyway. 

the presidential election later that year sent me into months of depression and grief that i had not had time to process.  i went to work but i talked to no one.  i moved my store to a temporary location in april 2017 for 6 months at the end of my first year-long lease.  i worked at the bookstore 1-2 days a week, at the jewelry store a couple of days a week and for a jewelry designer 3 days a week. i moved my house in may 2017.  i went to bed each night exhausted, sometimes hungry and always in mourning.

in novemeber 2017 i opened full-time in my permanent bookstore location.  my lifelong dream realized!  it's been a difficult run.  the neighborhood, in fact the city, is changing so fast and all retail is having a hard time adjusting.  the retail book business is especially hart-hit. in april 2018 i moved houses again. in april 2019 i lost my perfect, sweet, hilarious pug winston and i wanted to stop.  i wanted to refuse to go on.  i wanted to shout to the heavens that i'm tired of losing.  that last one i did.  the others i can't do.  that lost was the only of the many losses that made me feel as hopeless and as helpless as the loss of daddy.    

just last month the building in which i rent for the bookstore was sold to the university across the street.  my days/months are numbered.  there isn't any affordable commercial rent in nashville in the areas i could make a go of it.  i'm faced with another loss that doesn't feel possible to survive.  

i do know that i will survive it because i've survived all the rest but i'm sure beaten down by them.  i don't always know what to do with myself over them.  i'm not sure why i've suffered so many.  i try to repeat to myself a line from M*A*S*H that is 100% true.  BJ, in despair over what he's missing with his wife and daughter while away in a war, lashes out at margaret and hawkeye because with them being unmarried they can't understand his pain.  margaret says, "maybe you do have the most to lose but that's only because you've got the most." 

maybe i've lost so much because i had the most.

this is a long haul; thanks for sticking with me.

grace and peace

another year over

all i can think about today is that somehow, through no effort of my own, i have lived a whole calendar year on this planet without my daddy. when he died i didn't think i would live through the end of that day.  i was so surprised when i woke up the next morning.  i still have a hard time understanding how my heart continues to beat while his doesn't.  

i have hated most of this year but i could at least say, "last year daddy was here."  tomorrow i won't be able to say that anymore and it HURTS!

i got nothing else.

some hard words about grief (from a Christian perspective)

first, i am a Christian.  i believe in the divinity of Jesus Christ and i believe that i will spend eternity with him in heaven.  i believe the Holy Spirit lives inside me.  i believe God is my Father and wants a relationship with me.

second, i believe that grief HURTS and that doubt is okay.  i believe that pain is real and that anxiety is not an affliction of the weak. 

third, i believe that as Christians we are guilty of using trite, feel-good expressions of support that undermine the grief people feel when they lose a part of themselves. 

in august 2015 my father was diagnosed with stage 4 lung cancer.  he lived 8 months and left this earth on april 14, 2016.  a little background:  i’m 42, single, never married, a college graduate, a small business owner, an animal lover, a music lover, a book hoarder (i own a used book store) and a terrible guitar player.  i’m a loner, a near-hermit, i can go days (weeks) without other people and as long as i have my pets and my books i’m fine.  this blog is my clumsy way of working though some of the things in my life post-flood, post-PTSD diagnosis, post-learning to live life with sometimes crippling anxiety.

daddy was my all-time favorite person.  i’m southern and we southern girls are born and raised to worship our daddies.  he wasn’t perfect but he was sure wonderful. he had 4 kids and he lived his life so that he could be there for us whenever and however we needed him. 

when he died i felt, and feel, utterly lost.  this world, which makes little sense to me anyway, makes NO sense now.  i was in the process of opening my bookstore in the last months of his life.  he wanted to see me open.  he didn’t but he did get to see the space and be there as we painted and prepared.  he saw pictures and was so thrilled for me.  i postponed the opening but was open about 3 weeks after his death. 

i now work 3 jobs.  since he died, i spoke at his memorial service, opened the store, moved, filed bankruptcy and finally had a break down.  a couple of weeks ago i had numerous panic attacks in a 3 day span and couldn’t get out of bed let alone get to work.  i spent those 3 days crying in bed and avoiding everything and everybody i could.  when asked, i told people i missed daddy so much i was physically sick.  what i heard was:  "he’s in a better place", "he was a Christian", "he was in pain – you wouldn’t want him back in pain would you?", "he loved you", "you’ll see him again", etc, ad nauseam. 

i know all these things.  what i want acknowledged is this:  when someone precious dies the person left behind grieves in their own way.  what i want people to hear is that all these things (while true) DON’T HELP ME AT ALL.  see, his pain in over BUT MINE ISN’T.  he’s in heaven, BUT I’M STUCK HERE IN THIS COLD, HARD WORLD WITHOUT HIM.  my grief is for ME.  yes, there are times when i grieve for the things he will miss – seeing his grandchildren grow up, seeing the new peyton manning commercial, seeing hillary clinton wipe up the floor with donald trump in november – but what i really grieve is what i lost. 

if i ever do get married, he won’t be with me, when i’m sick he’s not here to take care of me, when one of our favorite M*A*S*H episode is on I CAN’T CALL HIM!  I DON’T WANT TO HEAR how selfish i am to grieve.  grieving is not selfish, it isn’t weak.   it isn’t something to be glossed over by saying things like “it gets better.”  maybe it gets better for others but right now i can’t guarantee it’ll get better for me.  he’s only been gone 5 months and i have every right to feel how i feel. 

again, if you don’t know what to say, just say, “i’m sorry.”

i will glory in seeing daddy in heaven but while i’m still on this hostile planet i will miss him every day.  i will grieve for what i lost. and i damn sure won’t apologize for it.

grace and peace and grief

catching up

haven't felt like writing for a while.  life is exponentially different these days. 

my wonderful daddy died in april.  for so long my life has been defined by "before the flood" and "after the flood" but now it's "before daddy got sick" and "after daddy got sick."  he was the most important person in my life.  having him gone has opened a whole in my heart that can't be closed. 

he went to the ER on august 20, 2015 and was diagnosed with lung cancer before that day was done.  he lived 8 months.  they were a hard but wonderful 8 months.  i miss him every minute of every day! 

since then i've undergone many a change.  i opened a business (a used bookstore) i moved, i filed bankruptcy, i started a new job, i asked God to let me go to heaven to be with daddy, i asked him to have my business succeed, i asked him to show me how to live a life without daddy on this earth.  i seem to ask him something new everyday but as long as i'm talking to him i have faith that he will provide.

i don't know what life is supposed to be.  is it supposed to be a series of traumas to survive?  is it supposed to be a choice between the lesser of two evils?  is it supposed to be pain on top of pain?  i don't know.  i know that scripture tells us that hard times WILL come.  we aren't supposed to go through life pampered and pain-free.  the pain that comes is supposed to test us and make us rely on God.  i hope that i've done that. 

i know my faith is strong.  i know my daddy would want me to keep going.  i know that i will.

grace and peace.

day 50 something

it's been more than a month since i've even thought about writing.  7 and a half weeks have passed since daddy went to the ER.  it feels like years to all of us i think.  since my last post daddy moved to a cancer treatment center where he received 3 weeks of radiation (5 days a week) and chemo (once a week).  now he's in a rehab center where he's getting physical therapy every day.  don't know how long he will be there.

 

then HOME.

 

we will meet with the oncologist later this month for test and reevaluation to decide on future treatment.  diagnosis is the same, of course, but prognosis is much improved.  i don't know how long he has and i find that rather unimportant at this point.  the important thing is that the time he has left, be it months or years, is as pain-free and as filled with love as possible. 

 

i want him here as long as i live.  that's obvious.  i can't imagine my life without him.  right now, though, i'm just glad he got to the hospital when he did and that we are in week 8 of the rest of his life.  had he not gotten there when he did i believe he would be gone now.  as hard as this is it is bearable compared to his dying untreated and in pain.

 

since this blog is in large part about my struggle with PTSD and anxiety i will try to address what i'm feeling as far as that goes.  it's hard to define, as i'm not sure i've stopped long enough to think about me during this, but here goes...

 

in some ways i've noticed my anxiety less in the past 8 weeks as i'm too focused on daddy to think of anything else and too tired to give a damn on the other had.  that being said, i'm shopping nearly 100% online because the thought of a store is terrifying.  not sure if it's exhaustion or increased anxiety but i have little to no ability to do even the few things i was able to do before. 

 

prayers please.

 

grace and peace

 

 



day 19

19 days ago daddy went to the ER with shortness of breath.  he was admitted and less than 5 hours later he was diagnosed with stage 4 lung cancer and intubated.  by the next day we were told he would probably never survive without the ventilator and that his diagnosis was week to months.

 

today we are on day 19 and he's breathing on his own most of the day, his lungs are improving thanks to a stent and removal of some of the cancer after a surgery on thursday.  as soon as he's off the vent they intend to do radiation and chemo.  i don't know what any of this means in terms of his overall diagnosis.  they aren't giving us a timeframe and that seems like good news.  they continue to be surprised at how strong he is.  he has no other health problems and never has.

 

i'm exhauted and scared but hopeful that his prognosis continues to improve. there is a possibility that when he's off the vent that he will be allowed to go home.  that is what we are praying for.  as i said, today is day 19, and i'm taking only my second day away from the hospital.  it's been a long time since i was this tired.

 

i have to finally go back to work on wednesday.  praise God that today is a holiday and tuesday is my regular day off so i've set my sights on wednesday as my return date. 

 

keep us in your thoughts and prayers.

 

grace and peace