thoughts about me

anxiety is a shape-shifter.  what i'm anxious about today may not bother me tomorrow and a new fear will rear it's ugly head.  there's no predicting it and no preparing for it. 

 

isolating is a part of who i am.  i'm an introvert to the nth degree.  i find people exhausting and infuriating.  i would much rather be alone with my books, my notebooks and my animals than be with anyone.  i've always been this way.  since PTSD it has become an even greater part of who i am - to an unhealthy degree.  agoraphobia is the term.  for the first year after the flood i was scared nearly to death to leave my house.  the very place i despise.  a vicious cycle ensued - so scared of what happened to me in this house that i found it impossible to leave it.  so mush so that stepping on the front porch would cause hour-long panic attacks.

 

now things are a bit different though i still struggle mightily with going anywhere.  it seems all too pointless and scary.  since daddy's been in the hospital(s) i've fallen into the familiar pattern of home, work, hospital, home.  no grocery store, no seeing my few remaining friends, no life but the small one i've been left with (or carved out for myself, i can't tell the difference).  the scary part, sometimes, is that i don't want to do anything else.  

 

i'm just wondering if this is all there is?  wondering if this is all i'll ever have?  i have so much work to do yet to manage my PTSD and i'm exhausted by having to do it.  part of me just wants to give up.  part of me can't imagine ever feeling better.  i know that's a symptom of the disease but it's an alluring one.

 

i touched base with my therapist today for the first time in weeks.  just today i realized that it's been at least 2 months since my last appointment and i think i'm feeling the result tonight. 

 

grace and much needed peace   

day 50 something

it's been more than a month since i've even thought about writing.  7 and a half weeks have passed since daddy went to the ER.  it feels like years to all of us i think.  since my last post daddy moved to a cancer treatment center where he received 3 weeks of radiation (5 days a week) and chemo (once a week).  now he's in a rehab center where he's getting physical therapy every day.  don't know how long he will be there.

 

then HOME.

 

we will meet with the oncologist later this month for test and reevaluation to decide on future treatment.  diagnosis is the same, of course, but prognosis is much improved.  i don't know how long he has and i find that rather unimportant at this point.  the important thing is that the time he has left, be it months or years, is as pain-free and as filled with love as possible. 

 

i want him here as long as i live.  that's obvious.  i can't imagine my life without him.  right now, though, i'm just glad he got to the hospital when he did and that we are in week 8 of the rest of his life.  had he not gotten there when he did i believe he would be gone now.  as hard as this is it is bearable compared to his dying untreated and in pain.

 

since this blog is in large part about my struggle with PTSD and anxiety i will try to address what i'm feeling as far as that goes.  it's hard to define, as i'm not sure i've stopped long enough to think about me during this, but here goes...

 

in some ways i've noticed my anxiety less in the past 8 weeks as i'm too focused on daddy to think of anything else and too tired to give a damn on the other had.  that being said, i'm shopping nearly 100% online because the thought of a store is terrifying.  not sure if it's exhaustion or increased anxiety but i have little to no ability to do even the few things i was able to do before. 

 

prayers please.

 

grace and peace

 

 



day 19

19 days ago daddy went to the ER with shortness of breath.  he was admitted and less than 5 hours later he was diagnosed with stage 4 lung cancer and intubated.  by the next day we were told he would probably never survive without the ventilator and that his diagnosis was week to months.

 

today we are on day 19 and he's breathing on his own most of the day, his lungs are improving thanks to a stent and removal of some of the cancer after a surgery on thursday.  as soon as he's off the vent they intend to do radiation and chemo.  i don't know what any of this means in terms of his overall diagnosis.  they aren't giving us a timeframe and that seems like good news.  they continue to be surprised at how strong he is.  he has no other health problems and never has.

 

i'm exhauted and scared but hopeful that his prognosis continues to improve. there is a possibility that when he's off the vent that he will be allowed to go home.  that is what we are praying for.  as i said, today is day 19, and i'm taking only my second day away from the hospital.  it's been a long time since i was this tired.

 

i have to finally go back to work on wednesday.  praise God that today is a holiday and tuesday is my regular day off so i've set my sights on wednesday as my return date. 

 

keep us in your thoughts and prayers.

 

grace and peace

what now?

what do you do on the day you get bad news?

charleston, part III

this may be my the last diatribe on charleston but it may not be.

 

 open letter to the murderer:

 

we are all made in God’s image.  we are ALL His children.  to hurt another human is to disgrace God.  to believe, or at least pretend to believe, that another race (nationality, creed, ideology) is such a threat to you that it gives you the right to wipe them off the face of the earth is INSANITY.  it is hyperbole.  you, white man, are not in danger of becoming extinct.  the cradle of civilization contained brown-skinned people.  you, white man, are the process of evolution and migration. The further north we traveled the lighter our skin became for our protection.  you, white man, are from a darker-skinned tribe.  get over it.  we are all just exactly alike on the inside. what difference, outside of some made-up, fearful, hateful ideology, can it possibly make?

 

to use the language of the lynch mob and declare, “you rape our women” before opening fire on innocents shows your twisted mindset.  guess what, white women aren’t YOURS!  we are not in need of your twisted protection from the black man. the protection we need, not just women, but the world, is protection from the thinking, teaching, violence and hatred in the hearts and minds of people like you!

 

may God have mercy on your soul.

 

may God have mercy on us all.

 

grace and peace

charleston, part II

i have a few more thoughts about what happened this week in charleston: do i think this is about guns?  yes.  i think any time a person in shot down in anger it's a good time to talk about our gun culture and the availability of weapons but i honestly don't see our intransigence crumbling after one more tragedy. and really my point is that this isn't about guns this is about racism (let's call it what it is: hatred).  this is about a man who indoctrinated himself or was indoctrinated by others (i suspect a bit of both) to hate.  it's the classic "us vs. them".  you see, this world is not about "us vs. them". no matter who the "us" or the "them".  this world is not about black vs. white, muslim vs. jew, male vs. female, catholic vs. protestant, sunni vs. shia, gay vs. straight, indigenous vs. pilgrim, urban vs. suburban vs. rural.  this world is about DARKNESS vs. LIGHT (put another way SIN vs. GRACE).

 

choices – that is what this world is about.  good vs. bad, right vs. wrong.  we can choose darkness or we can choose light. God is not in darkness. He is not in hatred. He is not in fear. He IS in the hearts of the families of the viciously murdered when they can, just a few short days later, say that there is not hatred in their hearts for the murderer. He is in forgiveness and love. God is love.

grace and peace

charleston, part I

below is facebook post one regarding the shooting of nine innocent people in a house of worship:

 

i wish i could think of something to say about what happened in charleston last night that would make a difference, that would make people think about racism, gun violence and our culture in a way they haven't before but i have nothing. absolutely nothing. this kind of thing just keeps happening and we just keep doing nothing. we'll shed a few tears, give a few dollars, debate the 'whys' and 'hows' and then the news coverage will fade and we will settle back into our safe,... easy, busy lives until the next mass shooting. then we'll act surprised and outraged that it happened again. we've got one maniac in colorado on trial for a mass shooting in a movie theatre and while that's in motion we get this one on the other side of the country shooting up a church. a church! but it's all the same. it's all hatred and pain and i'm sick of it. let's pray for the families and friends of the victims, let's pray for those shattered by the actions of someone they thought they knew, let's pray for this beloved country of ours that we will do a better job of teaching our children not to hate, that we will take greater care to treat mental illness, that we will pass reasonable gun legislation, that we will treat our brothers as we wish to be treated. all our brothers - the black ones, the gay ones, the muslim ones, the female ones, the poor ones, the homeless ones, the mentally ill ones, all God's children.

 

grace and peace